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Consumer and community involvement in clinical trials: exploring the nitty gritty of consumer advisory panels
In recognition of the value of genuine and meaningful engagement of consumers and the community in clinical trials, Monash Partners Academic Health Science Centre and Sydney Health Partners are pleased to host Consumer and Community Involvement in clinical trials: Exploring the nitty gritty of consumer advisory panels. This event will highlight practical strategies and lessons learned around setting up and supporting a consumer advisory panel. We do hope you can join us for this informative webinar.

Oct 25, 2022 11:00 AM in Canberra, Melbourne, Sydney

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Speakers

Brian Dalton
Brian brings a diverse and complementary set of skills and competencies built up over more than 30 years fostering the Consumer in the Health, For Purpose (Social/Community Services) and For Profit Sectors. He has ‘lived experience’ of the health care system as well as experience as a Consumer Representative member of advisory committees in Public/Private health care settings, tertiary institutes and with NSW Health. Brian is passionate about championing the consumer voice to foster a cultural shift that elevates consumer involvement from basic consultation to more consumer-leadership (empowerment), opening the way for more collaborative practice, co-design and integration into decision making that results in better healthcare options/outcomes.
Janelle Bowden
Janelle Bowden, PhD, is a scientist by training and has 20+ years of experience working in and around clinical trial operations in Australia and overseas, for sponsors, sites, and as a consultant. Janelle has a passion for creating more inclusive, accessible trials, and supporting greater consumer participation and involvement in research. Janelle’s social enterprise, AccessCR, provides clinical trial and consumer engagement services to the research sector (sites, sponsors, other organisations), so as to deliver on its mission to support, build capacity in, connect and advocate for the needs of people looking for, taking part in and contributing to medical research and clinical trials - the Community and Consumer Research Workforce (CCReW).
Brad Rossiter
Brad is one of HCNSW individual members and an outstanding patient advocate and health consumer representative who is happy to tell his story, as well as listen to others to help tell theirs. At the age of five, Brad was diagnosed with on-set Type 1 Diabetes. He managed - played sports, moved to Batemans Bay, became a butcher, married, and had a child. But in 1996, his health took a turn for the worse. Kidney disease and eye troubles started catching up with him. He received the greatest of gifts from someone whom I don’t know and have never met – a double organ donation! Brad is a consumer representative with ACI and the Clinical Excellence Commission (CEC). His role is to provide feedback from experiences, and to take information to consumers for their feedback and a consumer representative for the ACI Rural Health Network Executive. The purpose of this committee is to have a regional and rural voice at the table. I’m bringing feedback on issues from regional and rural consumers.
Stephanie Partridge
Dr Stephanie Partridge is a NHMRC/National Heart Foundation Research Fellow and Accredited Practising Dietitian at the University of Sydney. Her research vision is to minimise the harms and harness the benefits of digital technologies to improve adolescents’ lifestyle behaviours. She currently co-designs research with young people to find scalable, low-cost, and engaging solutions to improve their lifestyle behaviours.
Rebecca Raeside
I am a PhD Candidate and Research Associate in the Engagement and Co-design Research Hub in the School of Health Sciences, Faculty of Medicine and Health, University of Sydney. My background is in public health, and my current research focus is centred around primary prevention of chronic diseases in adolescents. My PhD focuses on the co-design, development and testing of a 6-month healthy lifestyle text message program to support physical and mental health in adolescents and strengthen engagement with primary care.